Becoming a parent is like
stepping in a new dimension. All your adult life nothing can prepare you for
what you are about to experience. I used to want to have kids, yes; but not
till I held my first born in my arms did it hit me, the responsibility it was
to have a small and fragile being completely dependent on me for everything. It
was daunting; I was at once scared and over joyed. My son switched on a person
in me which was till that point in hibernation mode, from a woman I became a Mother.
I don’t think that anything can
make you feel and act as you do for your own child. I will not generalize by
saying that all parents are self-sacrificing creatures and everything they do
is right; but nothing can explain the endless love you feel for your child. Sometimes
you may express it and most times you may not, but you are so strongly bound
with this person in ties of love and need that nothing in the world can
strangle that bond. It is not surprising then, that all our deep rooted issues are
tied up in our childhood and somehow tied up in our relationships with our
parents.
It was not with an easy mind that
I noted that my second born baby boy was not following the regular milestones.
My father started asking me why Sheru didn’t look when his name was called or
when something was pointed to him. I shrugged his remarks off lightly, but deep
down my mother’s intuition knew that he was right; something was wrong. When
Sheru turned 1, I feared that he may have hearing loss and this must explain
his lack of interest in his surroundings but then there was Barney, he could
watch his favorite toons on the tele for any length of time. It was the humans
around him, he didn’t interact with.
The first time I read the word Autism online I froze. Sheru displayed
all the symptoms; he had no eye contact, he didn’t respond to his name and he
had perfectly fine hearing. I read it, but I couldn’t believe it. It is not
happening to me, Sheru will be fine, I told myself and prayed. 6 months later I
could not hide behind the fact that he will “grow” out of it. I started my
quest, to know what I was up against but even when I read these words “non-verbal”
“sensory issues” “no social skills” they didn’t sink in, they were just words.
There was a beautiful boy running around with fat cheeks and watching Barney;
surely they were talking of other kids, it cannot be my boy.
December 2011, I travelled from
Quetta to Lahore, both my boys tucked under my arms to hear my worst fears
confirmed. All my life I have talked and now uttering one word was painful;
being told that maybe my son will never say a single word. I don’t know how to describe that moment,
there is no correct vocabulary invented to articulate the feeling that I had ; maybe
it was as if I was hit by a train and everything broke and still I was
conscious, maybe I am not sure.
But I know that I fell in a dark
hole that day, a hole of self-pity and remorse. A dark pit of immense guilt and
regret. I started blaming myself for having “done” this to my child, my precious
boy. If I had not done this, if I hadn’t done that; surely God was punishing me
for my sins. It has to be my fault and I am going to pay the price for all the evil
deeds I committed, rather my son will pay the price. What a befitting sentence
my Maker had sent my way; inflict pain on my dearest one.
Despite my inner battles, I knew
that time was of essence and I did not have the luxury to grieve. I started
looking for therapies to help Sheru and to educate myself. We started
behavioral and speech therapy when Sheru was 2 and half. We travelled to any
door that could help us doctors, faith healers and parents with Autistic
Children. Sitting in hospitals and waiting rooms; I pray that no person ever
has to carry their child to such places looking for answers, for there are
none. Autism has no cause and no cure.
Going into the therapy center was
a whole new world for me. Children of all ages, small and big with mothers so
dedicated, so brave; striving to make their children’s life better. I met with
such brave people that all my complaining seemed nothing in comparison. My pain
looked trivial compared with theirs. Parents with two or more kids on the
spectrum, women whose spouses left them for having special needs children.
Where there was so much pain there was also incredible and unconditional love.
Sheru started responding to his
name at age 2 and soon after started looking at me, sometimes for a few
seconds. Gradually he started connecting with me; but there were no words. He
had no connection with anyone or anything around him. Sheru would wander off
and I lived in constant fear of losing him. Once we were at a dinner in a public
place, I lost sight of him for a few moments and next he was gone. The ten
minutes that I spent, again only a parent can understand who loses a child,
they may have been ten minutes or a century I don’t know, it was too surreal
like living in a nightmare. What I know is that maybe I came out of that trance
only when I saw a cousin carrying him in his arms.
There were times when I would
wake up in the middle of the night and start fighting with God. “No You cannot
do this; give me expression and deny my son a normal life; You will not do this
to my child, punish me if you will, make me sick, but don’t deny my son a
normal life”, soon my banter would turn to groveling and begging and these
nights, I felt as If He was there and He was listening. The next morning I
would feel calmer and stronger, I know it sounds strange to a rational mind,
but this faith in a higher power has probably been the only thing that has kept
me going.
Sheru’s autism has been different
from day one; he has been slowly improving and coming out of his bubble. I
realized that all that the therapists told me was not correct; there is no way
that anyone can define what a person’s autism is like. One therapist told me
that when your child turns three, his symptoms will become so bad that you
wouldn’t know what to do. I started dreading every second that led to his
birthday; what will happen when he turns three. Three came and went and Sheru
didn’t not fall apart as I had been told, rather with every passing day he
surprised me till last September when one day he looked at me and said “Mama”.
This is just a word, one small
word for any other mother maybe; but not for mothers of autistic kids. This one
word means everything. I heard his voice and again I couldn’t believe it;
Sheru knew who I was after all.
From a desperate parent out to “fix”
his autism, I gradually made the transition to a parent who accepts their child
for who they are; he was never in need of fixing. All he needed was acceptance
for who he is, I didn’t need therapists to tell me when he will get better.
Sheru is limitless like the rest of us and no one has the right to put a cap on
his capabilities and his strengths. So he is not like a normal child, who is
normal anyway and who defines normal?
I have learned that it is not for
me to try and control his future, to live in dread of tomorrow. What will
happen five years later, no one knows. All I know is that this boy has changed
us as a family and changed me as a person . I have written this article today
on his 4th Birthday, my gift of acceptance; so that one day when Sheru reads my blog (and I
am sure that he will) he will have some understanding into the journey that has
been mine.
Happy Birthday Sheru, May Allah
bless you always as we are surely blessed to have you.